Author: RCRuiz

Recovery and balance after cancer treatments

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It’s a sign of recovery that I’m updating this blog more often. That I have the energy to finish writing a post on this blog is a big thing. Back in December, I would start writing and then end up not finishing because posting any kind of update cost so much effort. I still have some of that fatigue–but then in social situations where I think up words and then go–ah, it’s too tiring to say them.

One thing that’s helped me a lot through treatment has been the surprise called art making. I didn’t know just how much it would help me through the difficult days when I had no words, through the days when I couldn’t do more than sit on the couch or putter around the living room. A lot of times, my art making was me throwing color on canvas while I argued out loud with God. I think of the kind of upbringing I had were I had this idea that one was supposed to sit quietly in church and be really respectful when talking to God and use your best words because everyone else was doing that. But I have grown more convinced that God actually doesn’t care much for our pretty words.

I’m writing this as I wait for the results from my most recent scan. It’s funny how there’s always this feeling of tension after a new scan–it’s a moment where I tense up before I think: Ah, what’s the worst that can happen?

I mean, I had the “we cured you” talk, three years ago. And then three months later that changed to ” we thought we cured you, but actually we didn’t, and we don’t know if we can ever cure you. But this is the plan.”

I’ve had conversations where the scans were iffy. Where the results were non-conclusive but I was a good candidate for a clinical trial where I might get a chance at a new (as yet unavailable) drug. I’ve been through two trials and in none of these trials did I get the trial drug.

My last drug was Doxorubicin. It had this distinct characteristic of being red and in the lead-up to November, I saw some fake dextrose bags with red liquid being sold for halloween in shops. I made a joke about how my drug was the ultimate halloween drug. Doxo is scary in its strength and in its side effects and most days I was just out for the count after an infusion. The funny thing though was how it made me so hungry that I grew by 12 kilos in the months I was having the infusions.

I had six infusions of doxo as that was the trial requirement. By the sixth infusion, I was so relieved I felt like crying and cheering all at the same time. I just wanted to finish treatment and thankfully it looked like doxo did its job. Once again, we had the “we really can’t say you will ever be cured” talk. By that time, I was like: it doesn’t matter. I am so tired of hospitals and needles. I mean, I love my oncologist, but I would love if a time comes when I don’t have to see her anymore except for a social catch-up.

I’ve been out of active treatment for more than three months, but have to have a follow-up scan every two months. Each time, I almost forget until a reminder shows up that I have a hospital appointment.

I’m doing so well at physiotherapy that I’ve been moved to a program called Recovery and Balance. It’s a 12 week program towards recovery and at last night’s information evening, I had this feeling of: Oh dear, I didn’t know it was going to be this intense. I admit to being a little bit annoyed when I realised that I would have to rearrange all my planning around this program for the next 12 weeks.

But studies show that people who have gone through life-changing diagnoses such as cancer and its ensuing treatments, benefit a lot from programs such as the one I have signed up for. So, despite being annoyed, I have duly rearranged my agenda to make sure I can complete those 12 weeks.

Our physiotherapists tell us that it’s not just the physical that needs time to recover. Recovery is also psycho-social. It takes time to work through what’s happened and often people think it’s going well, but it turns out that there could be an underlying depression brought about by so much change and trauma.

I have to say that it’s when you’re going through hard times you’ll find what matters to you most and also you’ll see the people who will stick no matter how tough things are. It’s also in the aftermath of everything, when the busyness of hospital visits are over that you discover that there are people who were just waiting for you to have the energy and time to re-connect. I’m so thankful for those people. For friends and loved ones and for partners and fellow collaborators who refused to write me off because I had cancer. I’m thankful for people who kept me writing and who made the extra effort to reach out and ask me to submit and remind me about calls for stories. (By the time I was doing Doxo, I was just so out of it, I couldn’t even understand emails though.)

During one of our talks, I said this to my oncologist: Doctor, my life isn’t cancer.

Yes, my oncologist said. You are more than cancer. Your life is so much more than that.

I am thankful for an oncologist who sees that and who says those words to me out loud.

This post is a lot of personal, but I hope it will help someone out there who reads it.

To you who read this, thank you for reading. Blessings and peace.

Thoughts after LIMBO

/ RCRuiz

We are nearing the close of another season of LIMBO. It’s been a good season and watching LIMBO flourish as more participants come to the workshop meetings has been a source of joy for all of us who are involved.

It’s a privilege to bear witness to how participants discover and grow in their strengths–remembering that they carry all these talents and gifts with them and they have the right to be here and actually, they haven’t yet showed us all that they can be. During yesterday’s session, one of the participants painted a beautiful image of a butterfly breaking out of its cocoon–saying in their own words: “this is me in my former life and this is me in my life now, carrying some of the same colours from before, but I am more me now.”

The conversations in LIMBO are a reminder of why spaces like these are needed.

I worry a little as I think about the precariousness of LIMBO’s future. Will we still get funding for the next season? Will we be able to continue? How can we bring LIMBO’s participants into existing networks? How can we support the community of LGBTQ+ asylumseekers who have come to LIMBO?

I am then reminded that we can only do what we can do, right now. We can’t control the future. We can’t control circumstances or events, but we can do what we can do in this time that’s available to us with the resources that we have right now.

During yesterday’s workshop, Rafik Opti, our wonderful guest facilitator, invited us to visualise through painting, the kind of world we want to see. Maybe visualise through the use of animals, they said. And they used the example of how they like to visualise their self as a friendly dinosaur. It was such a beautiful sunny day and I was happy to be in LIMBO again after missing the last meeting because I was sick. I wanted to capture the brightness of the sun and the light I was feeling. I wanted to just smear colour on the canvas. I discovered that it doesn’t always work as I imagine it should, but I thought I saw a pterodactyl emerging from the mess I made, and flowers blooming amid the morass and then one of the participants said: ‘but I see an eye. I see an eye looking from the canvas and there is a flower blooming from its eye.’

I thought of how beauty can be found even in messiness and how art isn’t about perfection–just as life isn’t about perfection. The true art is in the ability to see what is hopeful and good and beautiful when we think there is none. I think that’s what we do for each other in LIMBO. Everyone goes through difficult days, but we can be there to remind each other that there are also sunny days and flowers can bloom in unexpected places.

I hope that you who read this entry will find flowers in unexpected places. Hope and joy to carry you through days that may sometimes seem grim and dark. I wish you blessings and peace and thank you for dropping by.

*If you have time, visit Rafik’s site. Make sure to watch Black Joy. Rafik is paving the way for others to follow in their footsteps.

A poem happens

/ RCRuiz

Spring 

and the trees aching 

In their beauty

reach towards the sky. 

Bare branches carry waiting leaves. 

And above, shades of pale blue and gray 

stained with 

shining white–we think it is yellow

but it is really more than that.

It is the colour of day

Spreading its light

Over houses thatched with grass.  

And the landscape 

blooms

with shades of yellow, gold and green;

turned earth 

and shadows breathe relief

while rows of knotted willows

guard the lanes

like sentinels waiting.

Today is my sister’s birthday

/ RCRuiz

I’ve been thinking about my sister in the in-between hours, all throughout the day. Perhaps it’s one reason why I felt somewhat agitated. It’s not until I took the time to sit down and think about the day that I realised it’s because I didn’t get to talk to my sister.

My sister and I were born almost exactly a year apart. Both of our birthdays fall in April. Hers falls earlier in the month and mine closer to the end of it. I think about my sister and the unexpectedness of her passing and what a gift it was that she was able to come to us and spend time with us in the months after Jan passed away. Little did we know that she would leave us too.

For a long time, I couldn’t put a name to what it was that I felt when my sister died. I was able to carry on after Jan’s passing, I was able to push through and still keep going, but when my sister died it was like the world stopped and I sank into a deep dark place. I’m not exactly sure how I got out of there, but time helps a lot and it helps when someone picks you up and says: you don’t have to do anything for a while, you just have to keep on living.

In the days when I was going through treatment, when chemo was rough and I didn’t want to even get out of bed, I thought of my sister saying: Come on, Rochita. Don’t just lie there. Fight.

And I would get up and I would make myself go downstairs and eat breakfast even if I didn’t feel like eating. I decided I wouldn’t die, but I would live.

Because there was so little of a gap between us, my sister and I were often mistaken as twins when we were kids. And my Mom liked to dress us up in twin clothing. There are loads of black and white pictures of the two of us twinning. For a long time, there was just me and my sister. We had to wait another seven years before the first of my brothers was born. My sister and I were each other’s best friends and confidantes. We could fight like cats and dogs, but we were each others’ allies. (It’s kind of impossible to remain hostile when you’re sharing a room.)

I want to honour my sister today. To remember the sound of her voice and the way she smiled. I’m thankful my sons have memories of her. That they know who I’m talking about when I talk about Tita Weng.

In 2022, when I was preparing for surgery, I had a dream about my sister. We were playing together under a big tree in the garden, and I was so preoccupied with what I was doing that I didn’t notice that she’d stood up and walked away.

Today, I remember my sister whose light I carry with me.

(Collage made in 2022)

Spring is in the air

/ RCRuiz

It’s been quite a busy period as not only is it exam week for the youngest one, it’s also been a week of appointments and events. I visited the municipal hall last week and handed in my application for a new passport along with a new id picture. It’s probably the first time since I’ve had a passport made that my passport picture doesn’t look like I’m running from the law.

A few days before I went to the municipal hall, I had new pictures taken. On my walk to the shop, I found myself ruminating on my previous passport picture and I decided to ask the photographer if it was possible to have one that was somewhat friendlier. As tends to happen, I walked into the shop and blurted out my thoughts to all and sundry including two surprised customers who burst out laughing when I announced that my last passport picture had me looking like I was a fugitive from the law.

It made for a lighthearted moment and I can happily say that for the first time, I have a passport picture that is somewhat friendlier.

At the municipal hall, there was some difficulty registering my fingerprints. I learned that intense treatments like chemotherapy has this effect of where fingerprints become a bit more hazy. It made me wonder if we ever lose our fingerprints.

“It happens with old people too,” the lady behind the counter says to me. “Not that fingerprints are ever erased, it’s just they don’t register anymore. But we also see this in people like you who have undergone chemo.”

And it somehow strikes me that she hasn’t tagged me as an old person but as someone who has undergone intense treatment.

On Saturday, I travel to Rotterdam. I’m headed there to support the project called Project Take Away. Take Away started as a neighbourhood initiative led by friends Marielle and her partner at ook_huis. It’s a lovely initiative which started with refugees and neighbours coming together to share coffee and talk about coffee and different ways of making coffee and as time progressed it evolved into something more. To celebrate their third year, Take Away released a book documenting three years of work. It’s an impressive volume with beautiful images but most importantly it reflects the vibrant life of this group of people who have been working together, caring for this community and for the neighbourhood and growing into this rich and beautiful art collective.

I think of how we forget the power of small movements like these. How practicing care in the community setting is a radical act in a society that’s grown more and more disjointed and disconnected. It’s not the size of the movement that matters, that we are doing a movement with intention is what matters. The intention drives the movement, drives momentum and leads to change.

I think of how these small movements are so vital when it comes to changing perceptions. When it comes to changing how we see each other and when it comes to making space and holding space for one another. I understand the antipathy that exists on one side of society towards asylumseekers, but I also want society to understand that if it were possible to live humanly where they are, people would not be seeking asylum. Living means more than surviving, living means being able to grow and thrive and fulfil your potential as a human being. This is why we can’t turn our backs or close our eyes to the circumstances that cause people to flee the countries of their birth.

It’s callous to say: ‘go back to where you came from’, when we don’t know the full story.

After the meeting at the Take Away space, we traveled to where Marielle was holding a reading/talk around a book she’d collaborated on together with the artist Chen Yun. This book, titled 51 Personae:Tarwewijk was five years in the making. It’s a unique and beautiful work documenting walks around the Rotterdam neighbourhood of Tarwewijk. What I love most about this work is how in the final publication, it contains the text from these walks in Dutch, English and Chinese. Not on separate pages, but these texts exist side by side on the same page or as extensions of each other.

It made me think of how it’s beautifully representative of the multicultural nature of society and how the world is made up of many different people speaking many different languages and there is room for all of us to live side by side.

Copies of this book are available at Available & The Rat.

I feel like I should write a little bit more about Available & The Rat, but I will do so another time. It’s a space that’s definitely worth visiting.

Spring is in the air. Out in the garden, things are growing. Our prunus tree has grown a bit more sturdy and is spreading out its arms. From the small seat by the water, I have a lovely view of back gardens with tulips coming up, a magnolia tree in bloom and a cherry blossom tree.

I have resolved to go and sit out beside the water as much as I can. For now, I’m ending this lengthy post.

Take some time out of your busy schedule to just sit and reflect on how you want to greet this new season. Life brings with it unexpected things, but when you take time to connect to what’s strong in you, you won’t be easily shaken.

Blessings and peace to you who read this and thank you for dropping by.

It’s only Tuesday and yet . . .

/ RCRuiz

Not that I post with any kind of regularity or schedule, but here I am on a Tuesday. I’ve enrolled in a five session course on portraits with acrylics and the first session went pretty well. The advantage of acrylics is the drying time and how it’s much easier to take it home to continue work on it. Compared to pastels where the work has to be carefully transported, acrylics are easy. I’m enjoying these courses which are in series of five sessions each time focusing on a particular medium as I feel like I want to understand how different mediums work.

I do enjoy portraits a lot and I want to try and see what different things I can do with it once I get the basics down.

When I was a young girl, my mother once showed my notebook of writings to the daughter of a friend of hers. I think my Mom was proud that I was writing, but I was quite embarassed because her friend’s daughter was (at that time) already playing the violin for a big orchestra. I was like: Eh…Mom. Why?

But instead of dismissing my work, this young woman looked at it carefully, then she said something to me which I’ve carried around much like a puzzle that I keep trying to unfold.

“An artist,” she said. “Can see beyond the leaf.”

I never got around to asking her what she meant because soon after that this violinist went abroad to play with other orchestras and our paths never crossed again.

I think of her words every now and then, though.

Today, those words came bubbling up again and I thought of the following reply:

“Beyond the leaf is a world (maybe more than one)

Lives are lived. Not all are told or written down in story.

Not one is insignificant.“

To you who read these words, may you be surprised by small moments of daily joy. Thank you for stopping by.

Here’s one of my favorite exercises from this week. On a background of sennelier soft pastel, an impression of branch and leaf.

Breathe in, Breathe out

/ RCRuiz

February turned out to be a more challenging month as the flu struck and just as I was feeling better, shingles happened. I had this idea that I could get through shingles with just paracetamol, but after enduring a night with no sleep and pain that I can’t describe, I caved and asked my doctor for stronger pain relief. Thankfully, my doctor prescribed pain relief quickly and I have been able to sleep through the night which accounts for why I no longer need the pain relief. I do have this incredible itch where the shingles outbreak happened and a burning sensation pretty much like when you have a bad sunburn.

Recovery from shingles is a process, but I’m glad I’m able to come upstairs to the workroom and do some art practice as well as a little bit of writing.

I was inspired quite a bit by some of the work that I saw when I visited the art fair and had a conversation with an artist who was doing some live painting. That conversation made me think about my own approach to art and art making.

During our conversation, the artist told me that what’s important is to find your own gestures and your own signature. What is it about your art that makes you the artist that you are? Every artist has a signature–not the name you sign, but it’s in the language that exists between the artist and the blank canvas/page.

I think about this conversation as I draw without having a particular goal. I draw repetitions of shapes as a way of tuning in to what am I feeling, what am I thinking, and what is going on in my body and in my spirit today.

Breathe in, breathe out.

In today’s world where everyone seems to want to rush towards a goal or to achieve something or to become someone, being in the moment frees us of all those stresses. When we are free from those stresses of becoming something, we can listen to what our bodies tell us.

Small circles, gridlines, spirals, repetitive mark making and repetitive movements. All of these things are practices that ground us in the body and in the moment. And being grounded allows us to transcend to where we can see beyond the mundane.

I’m stopping here for today.

To you who reads this, thank you for dropping by. Blessings and peace.

Finally, an update…

/ RCRuiz / 2 Comments

It’s taken time for me to get around to updating this online journal. There was a season when I felt as if I was inside a time capsule, watching the world go by, observing, doing, moving in some direction but always within that capsule. I had my last treatment right before December and since that time the capsule enclosure has become quite porous. At times, it feels as if a wild and eager rush pushes outward from inside me–a wanting to do and to go and to undertake so many things.

My oncologist says: we don’t know. We can’t say or predict how things will turn out. But the chemo has done what it’s supposed to do, and for now I have been moved to the list of people who are under observation.

It took me a good number of minutes to process what my oncologist said. I keep going back to that moment and checking in with myself. There are still things in my body–a nodule and a lymph node are mentioned in the scan report–things that can’t be easily removed through surgery. And yet, my oncologist isn’t worried. All I can feel is relief that chemo has ended.

I think to myself: There are more people walking around with things in their bodies, living lives and just being and doing and staying in the now. The length of our life spans is not something we can control, so why worry about that?

If you can let go of worrying, my physiotherapist says, then it’s already a win.

Why worry about something I can’t control? I reply. This, I can control. I can train my body to be physically fit. I can work to become stronger. Instead of obsessing about weight, I make sure to eat a balanced diet. As for the rest, I leave it in the hands of God. (So very Pinoy. Yes.)

I’ve decided that I’m going to keep living and keep doing things that I love and things that give me joy. I’ve decided to hold on to faith and to this knowledge that we do what we can do in the time allotted to us and life is about living one day at a time.

It’s going to take some time to find a new balance and I am thankful that time is being made so that I can find that new balance. Where people talk about spoons, our physiotherapists talk about buckets. You only have so much energy in your bucket and some things will deplete your bucket quicker than other things. You can empty your bucket in one go, but recovery is better when your bucket isn’t completely empty at the end of the day. Brain work, thinking work, social interactions, new situations can empty your bucket faster than doing the laundry and vacuuming your house. You’ve been in a space of time where for a long while, you’ve had to do all you can to just get through it. Once you’re no longer in treatment, it’s tempting to succumb to demands we imagine are being placed on us. But, it’s okay to say: no, I cannot or no, I don’t have the energy for that. It’s okay to pick and choose and to say: I can only do one or two things in a day.

And then, my physiotherapist says with a laugh. Of course, it’s in pushing ourselves that we discover our limits. And once we find those limits, we know how far we can go. If we go about it the right way, those limits expand as time passes.

I think of how the state of being in a limbo is one that allows us to become rooted in the present. In this now. In this moment. Tomorrow will come. Tomorrow’s worries are for tomorrow. Today, I am doing what I can to the best of my ability. I am here in this moment and I am thankful.

I didn’t have the brain space to write about LIMBO, but our December celebration was lovely.

Blessings and peace to you who read and may 2025 bring good things your way. Maraming Salamat for stopping by.

A note for readers who might be going through cancer treatment: if it’s possible and doable, oncological physiotherapy is a big help. I am thankful for the person who posted about it on a forum somewhere because it’s not standard at the hospital I go to. I found out that it’s standard for some hospitals though.

Time

/ RCRuiz / 2 Comments

A dear friend recommended Abraham Joshua Heschel’s work to me and I’ve been reading out of The Sabbath and thinking about time. Heschel’s work is beautiful. It’s thought provoking–mysterious and deep and also accessible and relatable. More than that, it is moving.

I think of time as I prepare to go to the hospital for my second chemo infusion in what’s called a second line treatment. I think of time when the doctor tells me that we are buying time. I think of time and how each of us comes into this world not knowing just how much we have of it and how even when facing a disease like cancer, there is no way of measuring or saying–this is how much time or this is the only time you have got. Science can get us so far, but the measure of our time in this world is not something anyone can predict. I’m saying this because my mother was told she had one year to live when she was 46 years old and here we are…my mother will turn 87 this year.

And yes, it’s true that it’s possible to extrapolate based on data, but even data is no guarantee because there are always other factors that might come into play. The truth is, we all hope for more time, but the most important time we’re getting is now and as my mother always tells me: just live today.

I remember back in 2023, when they told me the cancer was not gone after all. Back then, the numbers were quite frightening and the feeling of precariousness was strong. Because of where the tumors were located, I was also in quite a bit of discomfort.

Today, where I had radiation, things are quiet. My doctor sent me on vacation with a smile on her face saying: you can go through the 10 weeks without medication and when you return we’ll start on treatment again. And in those 10 weeks, I walked a lot and climbed a lot and did muscle training and felt like I felt 10 years ago. I’m thankful for the muscle training now because chemo does a number on the body and the more fit you are physically, the better you are able to withstand treatment (that’s what I keep hearing). In the week when I get chemo, I don’t feel all too happy. I don’t know if I’m hungry or nauseous, I don’t know what to do about all the things I’m feeling. I don’t want to take the anti-nausea meds because of the headaches, but I also don’t want to be throwing up, so I take the nausea meds anyway because they do help me get through the week.

But the week passes. I wake up one morning and my stomach feels settled. I go out and take a walk. I go back to my physiotherapy class. I meet up with loved ones. I do things. And thankfully, this time, I can read and write.

I think of time and eternal time and time that is in the hands of the creator and I think of how it’s possible to see beyond now. To understand that there is a timeline running alongside the now that I see and that timeline stretches and branches into different directions and different possibilities and how we are limited only to the extent that we allow ourselves to be limited. There is enough time even when people tell us there is no time. There is time even when the data says there might not be enough time. There is time because time is not something that we can command or hold fast or measure or make secure. What happens in a second can be of infinite significance even if we don’t see it just yet.

A little while back, my brother asked me what my prognosis was. I really couldn’t say because my doctor couldn’t say. But the more I think on it, the more I wonder if it’s all that important. Even when I am writing a story, the outcome may not be in my control because I can only bring my characters to the end of a particular story but beyond that story possibilities branch out. The work of change is never done. It is constantly in motion and so what I can do is simply trust that all the small movements being done in the present will tell and count towards a future that’s better for those who come after this story is finished.

I am cradled in love and lifted by grace and always thankful for the hope that I see even when the world is chaotic and muddled and filled with so much chaos.

Agyamanac Unay for passing by. May you too be cradled and lifted in love.