Finally, an update…

It’s taken time for me to get around to updating this online journal. There was a season when I felt as if I was inside a time capsule, watching the world go by, observing, doing, moving in some direction but always within that capsule. I had my last treatment right before December and since that time the capsule enclosure has become quite porous. At times, it feels as if a wild and eager rush pushes outward from inside me–a wanting to do and to go and to undertake so many things.

My oncologist says: we don’t know. We can’t say or predict how things will turn out. But the chemo has done what it’s supposed to do, and for now I have been moved to the list of people who are under observation.

It took me a good number of minutes to process what my oncologist said. I keep going back to that moment and checking in with myself. There are still things in my body–a nodule and a lymph node are mentioned in the scan report–things that can’t be easily removed through surgery. And yet, my oncologist isn’t worried. All I can feel is relief that chemo has ended.

I think to myself: There are more people walking around with things in their bodies, living lives and just being and doing and staying in the now. The length of our life spans is not something we can control, so why worry about that?

If you can let go of worrying, my physiotherapist says, then it’s already a win.

Why worry about something I can’t control? I reply. This, I can control. I can train my body to be physically fit. I can work to become stronger. Instead of obsessing about weight, I make sure to eat a balanced diet. As for the rest, I leave it in the hands of God. (So very Pinoy. Yes.)

I’ve decided that I’m going to keep living and keep doing things that I love and things that give me joy. I’ve decided to hold on to faith and to this knowledge that we do what we can do in the time allotted to us and life is about living one day at a time.

It’s going to take some time to find a new balance and I am thankful that time is being made so that I can find that new balance. Where people talk about spoons, our physiotherapists talk about buckets. You only have so much energy in your bucket and some things will deplete your bucket quicker than other things. You can empty your bucket in one go, but recovery is better when your bucket isn’t completely empty at the end of the day. Brain work, thinking work, social interactions, new situations can empty your bucket faster than doing the laundry and vacuuming your house. You’ve been in a space of time where for a long while, you’ve had to do all you can to just get through it. Once you’re no longer in treatment, it’s tempting to succumb to demands we imagine are being placed on us. But, it’s okay to say: no, I cannot or no, I don’t have the energy for that. It’s okay to pick and choose and to say: I can only do one or two things in a day.

And then, my physiotherapist says with a laugh. Of course, it’s in pushing ourselves that we discover our limits. And once we find those limits, we know how far we can go. If we go about it the right way, those limits expand as time passes.

I think of how the state of being in a limbo is one that allows us to become rooted in the present. In this now. In this moment. Tomorrow will come. Tomorrow’s worries are for tomorrow. Today, I am doing what I can to the best of my ability. I am here in this moment and I am thankful.

I didn’t have the brain space to write about LIMBO, but our December celebration was lovely.

Blessings and peace to you who read and may 2025 bring good things your way. Maraming Salamat for stopping by.

A note for readers who might be going through cancer treatment: if it’s possible and doable, oncological physiotherapy is a big help. I am thankful for the person who posted about it on a forum somewhere because it’s not standard at the hospital I go to. I found out that it’s standard for some hospitals though.

Bucketlist

There was a time when I was a struggling university student that I used to go with a girlfriend to one of the high-end shops in Ayala. My girlfriend was tiny and fair-skinned and looked like a princess and while she had to make do with her allowance (just like I had to) it was quite obvious that she was from a well-to-do family. In the Philippines, fairness is associated with wealth and my darker complexion as well as my non-fairylike appearance made that people tended to associate me as coming from a lower economic bracket. Not that I cared. But well…anyway…my girlfriend liked window-shopping and so we would window-shop at those high-end stores.

We had a planned dialogue, my girlfriend and I. She would try something on, come out of the changing room and ask me what I thought and I was supposed to say that I wasn’t quite sure if it was really her thing. Of course, she would later on squee about how much she liked it but as we were struggling students, just being able to see what it looked like on her was just as good as buying things.

During one of these outings, she proposed making a list of things to buy. She showed me her list and said I should write one too. To humor her, I also made a list of things which included a watch from some upscale brand. We later parted ways and as tends to happen, we lost touch.

I have to laugh today because I just sat down to write a bucket list (entirely different from the list of things to buy…but it had me thinking of her). She had a pretty long list by the end of one year and I never found out if she went back to buy anything.

The bucket list I’m making seems to keep on growing and I find myself wondering how many people have bucket lists and what happens to those lists should they go uncompleted?

Just this week, I had a long talk with my GP. It was a great talk because we talked about my diagnosis and the implications of where I am in right now. One of the things she said to me was that I had the happy characteristic of being someone who was able to see the good in life no matter the circumstance. I suppose it’s true. I can’t control or change the circumstances, so I don’t really see the point or the use of crying or complaining about it (although I do sometimes grumble about it).

In the meantime, I’ve started on my bucket list and it’s already got thirty things on it. I think of something someone said to me–this is someone who went through a cancer scare and had the works and is now clean. He told me that his partner made a portrait of him while he was in hospital. It was a portrait in pencil, but his eyes staring out from the portrait are striking and full of life. He said to me that his partner had said: Oh, your eyes are good. They’re full of life. You’re going to be okay. I think to myself: but look, I am still full of life, aren’t I? And I think: I am still okay.

Today, I am preparing for tomorrow. Today, I am writing a list. Today, I have the energy to go out and bring things away. Today, I can pick up groceries and cook and prepare for the weekend. Today, I can be present for my youngest son who is still at home. Today, is full of possibility and there is still a lot of today left.

So, today I decided to share on here a close-up detail from one of my paintings. I liked this unexpected detail because it made me think of how while we only see the now moment, we don’t know how today affects everything that unfolds around us. So, let’s just keep on living and doing all that we can today.

Blessings and peace and Agyamanac Unay for reading.