Today is my sister’s birthday

I’ve been thinking about my sister in the in-between hours, all throughout the day. Perhaps it’s one reason why I felt somewhat agitated. It’s not until I took the time to sit down and think about the day that I realised it’s because I didn’t get to talk to my sister.

My sister and I were born almost exactly a year apart. Both of our birthdays fall in April. Hers falls earlier in the month and mine closer to the end of it. I think about my sister and the unexpectedness of her passing and what a gift it was that she was able to come to us and spend time with us in the months after Jan passed away. Little did we know that she would leave us too.

For a long time, I couldn’t put a name to what it was that I felt when my sister died. I was able to carry on after Jan’s passing, I was able to push through and still keep going, but when my sister died it was like the world stopped and I sank into a deep dark place. I’m not exactly sure how I got out of there, but time helps a lot and it helps when someone picks you up and says: you don’t have to do anything for a while, you just have to keep on living.

In the days when I was going through treatment, when chemo was rough and I didn’t want to even get out of bed, I thought of my sister saying: Come on, Rochita. Don’t just lie there. Fight.

And I would get up and I would make myself go downstairs and eat breakfast even if I didn’t feel like eating. I decided I wouldn’t die, but I would live.

Because there was so little of a gap between us, my sister and I were often mistaken as twins when we were kids. And my Mom liked to dress us up in twin clothing. There are loads of black and white pictures of the two of us twinning. For a long time, there was just me and my sister. We had to wait another seven years before the first of my brothers was born. My sister and I were each other’s best friends and confidantes. We could fight like cats and dogs, but we were each others’ allies. (It’s kind of impossible to remain hostile when you’re sharing a room.)

I want to honour my sister today. To remember the sound of her voice and the way she smiled. I’m thankful my sons have memories of her. That they know who I’m talking about when I talk about Tita Weng.

In 2022, when I was preparing for surgery, I had a dream about my sister. We were playing together under a big tree in the garden, and I was so preoccupied with what I was doing that I didn’t notice that she’d stood up and walked away.

Today, I remember my sister whose light I carry with me.

(Collage made in 2022)

It’s only Tuesday and yet . . .

Not that I post with any kind of regularity or schedule, but here I am on a Tuesday. I’ve enrolled in a five session course on portraits with acrylics and the first session went pretty well. The advantage of acrylics is the drying time and how it’s much easier to take it home to continue work on it. Compared to pastels where the work has to be carefully transported, acrylics are easy. I’m enjoying these courses which are in series of five sessions each time focusing on a particular medium as I feel like I want to understand how different mediums work.

I do enjoy portraits a lot and I want to try and see what different things I can do with it once I get the basics down.

When I was a young girl, my mother once showed my notebook of writings to the daughter of a friend of hers. I think my Mom was proud that I was writing, but I was quite embarassed because her friend’s daughter was (at that time) already playing the violin for a big orchestra. I was like: Eh…Mom. Why?

But instead of dismissing my work, this young woman looked at it carefully, then she said something to me which I’ve carried around much like a puzzle that I keep trying to unfold.

“An artist,” she said. “Can see beyond the leaf.”

I never got around to asking her what she meant because soon after that this violinist went abroad to play with other orchestras and our paths never crossed again.

I think of her words every now and then, though.

Today, those words came bubbling up again and I thought of the following reply:

Beyond the leaf is a world (maybe more than one)

Lives are lived. Not all are told or written down in story.

Not one is insignificant.

To you who read these words, may you be surprised by small moments of daily joy. Thank you for stopping by.

Here’s one of my favorite exercises from this week. On a background of sennelier soft pastel, an impression of branch and leaf.

Finally, an update…

It’s taken time for me to get around to updating this online journal. There was a season when I felt as if I was inside a time capsule, watching the world go by, observing, doing, moving in some direction but always within that capsule. I had my last treatment right before December and since that time the capsule enclosure has become quite porous. At times, it feels as if a wild and eager rush pushes outward from inside me–a wanting to do and to go and to undertake so many things.

My oncologist says: we don’t know. We can’t say or predict how things will turn out. But the chemo has done what it’s supposed to do, and for now I have been moved to the list of people who are under observation.

It took me a good number of minutes to process what my oncologist said. I keep going back to that moment and checking in with myself. There are still things in my body–a nodule and a lymph node are mentioned in the scan report–things that can’t be easily removed through surgery. And yet, my oncologist isn’t worried. All I can feel is relief that chemo has ended.

I think to myself: There are more people walking around with things in their bodies, living lives and just being and doing and staying in the now. The length of our life spans is not something we can control, so why worry about that?

If you can let go of worrying, my physiotherapist says, then it’s already a win.

Why worry about something I can’t control? I reply. This, I can control. I can train my body to be physically fit. I can work to become stronger. Instead of obsessing about weight, I make sure to eat a balanced diet. As for the rest, I leave it in the hands of God. (So very Pinoy. Yes.)

I’ve decided that I’m going to keep living and keep doing things that I love and things that give me joy. I’ve decided to hold on to faith and to this knowledge that we do what we can do in the time allotted to us and life is about living one day at a time.

It’s going to take some time to find a new balance and I am thankful that time is being made so that I can find that new balance. Where people talk about spoons, our physiotherapists talk about buckets. You only have so much energy in your bucket and some things will deplete your bucket quicker than other things. You can empty your bucket in one go, but recovery is better when your bucket isn’t completely empty at the end of the day. Brain work, thinking work, social interactions, new situations can empty your bucket faster than doing the laundry and vacuuming your house. You’ve been in a space of time where for a long while, you’ve had to do all you can to just get through it. Once you’re no longer in treatment, it’s tempting to succumb to demands we imagine are being placed on us. But, it’s okay to say: no, I cannot or no, I don’t have the energy for that. It’s okay to pick and choose and to say: I can only do one or two things in a day.

And then, my physiotherapist says with a laugh. Of course, it’s in pushing ourselves that we discover our limits. And once we find those limits, we know how far we can go. If we go about it the right way, those limits expand as time passes.

I think of how the state of being in a limbo is one that allows us to become rooted in the present. In this now. In this moment. Tomorrow will come. Tomorrow’s worries are for tomorrow. Today, I am doing what I can to the best of my ability. I am here in this moment and I am thankful.

I didn’t have the brain space to write about LIMBO, but our December celebration was lovely.

Blessings and peace to you who read and may 2025 bring good things your way. Maraming Salamat for stopping by.

A note for readers who might be going through cancer treatment: if it’s possible and doable, oncological physiotherapy is a big help. I am thankful for the person who posted about it on a forum somewhere because it’s not standard at the hospital I go to. I found out that it’s standard for some hospitals though.

On my mind today

One of the marks of a good leader, my father said, was the capacity to encourage others to make full use of their talents and to make others grow into their gifts. It’s not about having the loudest voice or being the most visible, it’s about thinking on how we can help others discover and become their best selves.

My Mom also used to tell me that the sign of being a good teacher was when your student outgrows you and no longer needs you.

I think about these things because one of the writers who came to attend the six week workshop I gave for Other Futures (and who I’ve been mentoring a bit since then), was accepted to the Clarion Workshop. It is quite a milestone moment and I feel like a proud mama bird watching a fledgling spread their wings.

Last Saturday, I got to do one of the things that brings me joy. I got to work with young people again. This is a thank you to Lana Jelenjev and the Neurodiversity Foundation for inviting me to give a workshop to young people between the ages of 11-17 as part of celebrating Neurodiversity pride day.

There’s something about the way young people approach the act of creating together that makes me so hopeful. I saw the will to encourage one another, the willingness to compromise and make space for each other, and the readiness to help when the other person gets stuck. As Lana’s husband said afterwards, we could all learn a lot just by watching the kids work together.

It makes me think of how we all have that capacity to create and work together within us. Maybe it’s just that some of us didn’t know that we could just go about it, or we’ve been so programmed with this idea of individualism (mine is mine and yours is yours), we’ve been trained to think so much in boxes that we forget the joy of collaborating. And then, there is this soul-killing thing which I’ve sometimes observed in the grown up world where people think the important thing is to be better than someone else, win the most awards, have the most fans, make the most money, sell the most books…that sort of thing.

Life and art and the creation of story are not a competition. It’s not about having the best words or the coolest ideas, it’s about feeling safe enough to share what you love that make life and art and creation beautiful. What I loved about Saturday’s workshop was how I got to see young people bounce ideas off of one another in a space where they feel safe from being judged or found wanting, they just went ahead and talked about things they loved or were passionate about and they made space for each other to include those things in the worlds they were creating.

This method of creating together is a practice not only in worldbuilding but also a practice in bridge-building, in compromise and collaboration.

We could certainly do with more bridge-building and collaborating in these turbulent times, because it often feels like we have forgotten concepts like meeting each other halfway and compromise. We think we have waited a long time for change to happen and we would really like for change to have happened yesterday. The problem is, we live in a world that’s run by systems and systems are slow and resistant to change. As a good friend said to me: “you think maybe by being in the system, you can change the system, but it’s such a complex thing because by being in the system, you somehow become part of it.” I really don’t know what the answer is. We can only do what we can to the best of our abilities and hope that the little that we do will create some change no matter how small.

This week, I was in conversation with a dear friend, we also talked about this same thing. She told me about how she learned to think in terms of “good enough”. Perhaps it’s not the ideal change, perhaps it’s not the big change that we wanted, but maybe it’s good enough for now. How change happens in increments of time, by checking in and finding out whether a recalibration is needed. Maybe we can move forward a little bit more or it could be that we have to just be satisfied with good enough until the next check in moment.

I think about the words “good enough” when I have the conversation with my oncologist later in the day. I ask my questions and she patiently explains her interpretation of the data. It’s not yet where we want to be, but it’s good enough for now. And while the ideal would be to be completely rid of all the tumors, nodules, lesions and bad cells floating around, a stable or chronic state for a long period of time would be good enough.

It may sound like a strange comparison but I make these jumps in my head because that’s how the brain works. I think: it’s okay to not achieve the ideal all in one go. It’s okay to take it step by step. The important thing is to remain open and curious, interested and ready to look into options and points of compromise. Yep. I’m making the body and world parallel again.

Today, I’m speaking to my body. I’m thankful because I have a strong and sturdy body that has withstood a massive operation and all the treatments so well. I am thankful that I am able to work at regaining the strength and fitness that I had before it all started. I am thankful for the spirit that lives in me, that reminds me to take it one day at a time. I am thankful for today. Thankful that I can hug my son and tell him how proud I am of him (he’s having a bit of a tough time atm). I am thankful for friends who have reached out to me, for loved ones and for people from surprising places who tell me they are sending healing thoughts or praying for me. There’s always something to be thankful and joyful about.

As long as we have life in us, we are not without purpose. We are here to make as much of a difference as we can make. Sharing our stories, passing on our experience, strengthening and encouraging others to spread their wings and fly–discovering things, making memories (all those other things) remind us we are alive. As long as we are in the world, we can make every moment count.

Agyamanac Unay for stopping by. Blessings and peace to you who read these words.

memorials

Today is my elder sister’s death anniversary. I considered posting about it on FaceBook which is the social media thing for a lot of Filipinos, but something in me rebels at the thought of remembering my Ate and having people put likes on the post. I know the intention is always good, but my insides just don’t feel in tune with doing that. (But still I’m writing this post because I didn’t want this day to pass without remembering her in some way.)

For a long while, I blamed myself for my sister’s passing. I thought: how could I not have seen it? She was here with me in the months after my husband died. How could I not have seen it? I blamed myself for being so preoccupied with my life and my sorrows at that time–if I hadn’t been so self-absorbed, I might have been able to do something. I don’t know what I blamed myself for not seeing. She spent three months with us and one month after she arrived back in The Philippines, I got a phone call telling me she was gone.

It wasn’t until about a year ago that I had the courage to ask my brother what the diagnosis was. It turns out my sister had sepsis. Something had entered her bloodstream and poisoned her. Sepsis goes so quickly that by the time it manifests, it can be too late.

The cancer I was diagnosed with is also something that doesn’t manifest. It doesn’t show up on blood tests unless you’re looking for it, and because I was pre-menopausal, what might have been warning signs could just as easily be pre-menopausal stuff. That it was found came about because I remembered my sister had a non-cancerous fibroid that was causing her some trouble and I wondered if that might be the same for me. When we sent the test away, we were perfectly confident it would be nothing–but it was something after all. A part of me wonders if it was still my Ate, looking out for me.

We measure grief in moments of time. How many days has it been? How many years? We light candles or we carry out rites of remembrance. We post pictures on social media, we try to find words for our grief.

And yet, for all that she’s no longer physically here, my sister is with me. When I am on the verge of giving up, it’s her voice I hear scolding me. She was really strict with me about not giving up. Ano ka ba? She would say. Okay, if that’s how you want to end up as. (The implication being that if I give up, it’s not her fault if I get called someone who gave up.) Even though she’s no longer here, she still remains my number one cheerleader.

Losing my sister was painful because of how sudden it was. It was painful because there was so much still left unspoken and undone. (We were still going to Paris. We were going to travel together. We were going to grow old and talk about all the books we had read.)

Sister relations are never simple. My relationship with my sister was complex. We were at times adversaries. I remember her banging on our shared bedroom door while I listened to Queen or to David Bowie–and I remember her telling on me. ‘Mom, Rochita’s listening to rock music again.’

But even so, she was also my staunchest ally and my most trusted friend.

Grief softens with time (they say). And it’s true, it does. The sharp edges are gentled. But the missing remains. When I think of my sister, I no longer feel as if I am held fast in that dark moment where the world has lost all meaning or context. I think of how she would want me to walk forward and to take on life and live it as ferociously as I can with as much courage as I can.

Today, as I remember my Ate, I make the decision once again to keep embracing life. Everyday, I make the choice to embrace life and live life. I am present here and I am present now. Now is when I can do what I need to do. Tomorrow will take care of itself.

Blessings and peace to you who read this. Agyamanac Unay for passing by.

Fluidity and freedom

After the first LIMBO of 2024, I find myself eager to see how future LIMBO’s will unfold. We started the first LIMBO with some discussion and reading and from that discussion and reading we went on to write our own letters inspired by some readings from The Letter Q: Queer Writers Notes to their Younger Selves. For those interested, some of these letters are available on poets.org.

The letter writing was a divergence from the workshop theme/plan which I had in mind, but in coming to LIMBO, I felt what was important was to find out first where the discussion would lead us. Every announced aspect of the session was a placeholder for what might come up as being more important or beneficial to the participants at the moment. I think the fluidity of conducting meetings in this way might be more helpful/fruitful than creating a set program with activities we nudge participants towards. I think of how participants might come up and say: can we do this instead? Or can we work together on something? I’m curious as to that last part as I do want to try something at a future meeting.

For me, LIMBO is an ongoing process and it’s one that I find quite joyful. I do wonder how workshop culture would change if we shifted our approach and started asking ourselves: what is it that those coming to the workshop need in this moment? Is it be possible to make room for a different approach and would a consumer-minded society be willing to embrace a workshop that doesn’t clearly label itself from the get-go?

For all the complexity that comes with it, I find LIMBO to be freeing. No doubt there will be difficult moments but LIMBO is about working together to hold and keep this space wherein we can all just be (as one of the participants so beautifully put it) just be human.

Here’s a challenge that mirrors what we did: Read one or two letters from the Letter Q out loud. Give yourself 30 minutes and write a letter to yourself: could be your younger self, your present self or your future self. No editing. No passing judgment on yourself. Just write. Afterwards, read out loud. Ask yourself: what surprised you?

Blessings and peace to you who read and may you find yourself joyfully surprised.

Bucketlist

There was a time when I was a struggling university student that I used to go with a girlfriend to one of the high-end shops in Ayala. My girlfriend was tiny and fair-skinned and looked like a princess and while she had to make do with her allowance (just like I had to) it was quite obvious that she was from a well-to-do family. In the Philippines, fairness is associated with wealth and my darker complexion as well as my non-fairylike appearance made that people tended to associate me as coming from a lower economic bracket. Not that I cared. But well…anyway…my girlfriend liked window-shopping and so we would window-shop at those high-end stores.

We had a planned dialogue, my girlfriend and I. She would try something on, come out of the changing room and ask me what I thought and I was supposed to say that I wasn’t quite sure if it was really her thing. Of course, she would later on squee about how much she liked it but as we were struggling students, just being able to see what it looked like on her was just as good as buying things.

During one of these outings, she proposed making a list of things to buy. She showed me her list and said I should write one too. To humor her, I also made a list of things which included a watch from some upscale brand. We later parted ways and as tends to happen, we lost touch.

I have to laugh today because I just sat down to write a bucket list (entirely different from the list of things to buy…but it had me thinking of her). She had a pretty long list by the end of one year and I never found out if she went back to buy anything.

The bucket list I’m making seems to keep on growing and I find myself wondering how many people have bucket lists and what happens to those lists should they go uncompleted?

Just this week, I had a long talk with my GP. It was a great talk because we talked about my diagnosis and the implications of where I am in right now. One of the things she said to me was that I had the happy characteristic of being someone who was able to see the good in life no matter the circumstance. I suppose it’s true. I can’t control or change the circumstances, so I don’t really see the point or the use of crying or complaining about it (although I do sometimes grumble about it).

In the meantime, I’ve started on my bucket list and it’s already got thirty things on it. I think of something someone said to me–this is someone who went through a cancer scare and had the works and is now clean. He told me that his partner made a portrait of him while he was in hospital. It was a portrait in pencil, but his eyes staring out from the portrait are striking and full of life. He said to me that his partner had said: Oh, your eyes are good. They’re full of life. You’re going to be okay. I think to myself: but look, I am still full of life, aren’t I? And I think: I am still okay.

Today, I am preparing for tomorrow. Today, I am writing a list. Today, I have the energy to go out and bring things away. Today, I can pick up groceries and cook and prepare for the weekend. Today, I can be present for my youngest son who is still at home. Today, is full of possibility and there is still a lot of today left.

So, today I decided to share on here a close-up detail from one of my paintings. I liked this unexpected detail because it made me think of how while we only see the now moment, we don’t know how today affects everything that unfolds around us. So, let’s just keep on living and doing all that we can today.

Blessings and peace and Agyamanac Unay for reading.

Evolution

There’s a Dutch phrase that captures the emotion for what we have gone through–het laat mij niet in de koude kleren zitten. Which means that all we’ve gone through as a family, all I’ve gone through as a person, these things have not left me unchanged or unmoved.

It’s a good thing to be moved and to be changed because it means I am still alive. I am still feeling, I am still living and I am constantly in transition, evolving, changing, not standing still. I think about this as I find myself surprised at how this season, this moment of being in a state of limbo, has feed the creative in me. I write, because I love to write. I make music because I love to make music. I teach because I love seeing how those I teach bloom into their potential. And I make art because a lot of times, when I am making art, I find myself in conversation with my maker.

Before 2022, I never imagined I would be making art as I do today. Or that it would become so important to me or that it would help me talk about what I am going through or that it would be a pathway to growing and knowing myself better. (I used to say that I write because I can’t paint or draw and am basically useless at art.)

When I told my Mom about my diagnosis in 2022, her command was for me to go ask God what his purpose was with me. At that time, I had no words for writing anything. I couldn’t even speak about what I was going through. Imagine being a writer unable to write or say anything about the storm going on inside you?

This was one of the first images I made which expresses what I was going through at the time. It was hope and agony and my soul just crying out. It was: God, if you really see me, then do something.

From that moment, telling the story of that time happened through images. Sometime in 2022, a friend proposed that I should try making use of acrylics. My first approach to painting was to simply splash color on the canvas. To try and put on the canvas or on paper what was in my head or in my heart at the moment.

This stormy canvas was just me saying: here I am in the middle of this storm and the storm is so big, I can’t even begin to describe it.

Making something visual happened because I had no words. But when you are without words for more than a year, and when you are engaging with art making almost everyday for a year, your work changes. One day, early this year, something told me that the way I was working was going to change and so was the art.

I think about the process of art making and how making art led me back to writing and how art that’s on the canvas tells a story just as the words on a page tell a story. We create because we have stories inside us that we want to share and stories will find their way out of the person bearing those stories. If not through words, it will be through other means of telling. (Just consider the plethora of youtube stories, audio stories, film stories..etc., etc.)

The more we engage with telling stories, the better we become at them. The more we engage with a certain medium, the better we become at that medium. Before my diagnosis, I would never have dreamed that I would someday tell stories through painting. After diagnosis, I thought I would never be able to tell stories through words again.

There are a lot of famous saying about life and art, but for the life of me, I can’t remember a proper one at the moment, but I do believe that art and life are intertwined. If anything, being diagnosed has made me more conscious of how important it is to live a life with purpose. To create marks with deliberation and care, to engage fully and be present in the moment, to look–really look, to really see and to also rest and be in the moment and allow moments to flow over me and change me and transform me so I can bring that back to whatever I am working on at the moment whether it is on art, on writing or my relationships.

I keep thinking of that friend who said to me “if only we knew how much time we had”. The truth is, we know. We know our time on this planet is not infinite. We know it, we just don’t want to acknowledge it.

I think about this as I contemplate the story of my life and I find myself wondering about the overall arch and how the completed story will read like or look like if it were in a book or hanging in a gallery. When we are in the process, we only see now. We only see this moment.

This is one of my latest works in progress (yup, I have more than one). I’ve been working on it for almost two months. I do a little work. I put it away. Think about it. Work on it some more. Right now, it’s missing one more element which I am thinking about.

I can honestly say that I don’t know why I am writing this or sharing this at this moment. It just felt good to do so. I don’t know what 2024 holds. I don’t even know what will happen tomorrow or next week or the weeks after that. Today, I am heading to the hospital. I am getting a CT scan. I am doing what I can to keep my body healthy. I am spending time with my kids and with my loved ones. I am writing. I am alive.

Blessings and peace to you who read this. Choose life.