Update

Create and co-create

/ RCRuiz

On my wall, there’s a postcard with the words: Create the things you wish existed. It’s a card that came with an order of art supplies and I loved the words so much I pasted it up where I can see it as a reminder.

From one of the mailing lists that I subscribe to, there’s a link to the work of an amazing artist named Leilah Babirye. If you have time, click on the link leading to the video as it’s so inspiring and a great reminder that when we are engaged in art, we can’t be afraid.

I’m thinking about this as I think about LIMBO and the participants who come to share and create together. More than the things that we produce or make during the time together, it’s about how we hold space for one another and create together the kind feeling that exists in that time. When it’s my turn to give the workshop, I step into the space and think about who’s here and what do they need. Where Leilah talks about reading and listening to the piece, facilitating means listening to the space and reading with the heart. I bring to the workshop all the things that I have learned from other practitioners and I bring also what I have learned from my own journey.

Yesterday, we engaged in making rhythmic combinations, dance steps and improvisations as well as song. I had in mind this idea that we needed to give an answer to the wishlist that had been presented by participants sometime at the start of the season–the wish to create a LIMBO dance as well as a song that comes from us and expresses us.

There was laughter, there was singing, there was lots of body movement and dancing and there was a beautiful musical rendition gifted to us that afternoon by one of LIMBO’s participants.

I love how moments like these give rise to spontaneous sharing. It’s a testimony to how participants feel safe to talk about what they’re going through and what they’re feeling in the moment. To me, it’s this precious quality that we need to take care of when we talk about community.

Today, I am thankful for the privilege of being invited and included in this community. One of the things I’ve learned and continue to be reminded about in LIMBO is how it doesn’t matter that there are moments of discomfort and unease–that sometimes topics can become fraught–that people will have differences. But this is okay. I think of Aminata Cairo talking about family gatherings and how there may be that uncomfortable relation who can get argumentative and you think: Oh, I will just keep a distance. But even so, if we believe we are all connected, then there is still space for discomfort. We don’t always need to resolve it, but we can acknowledge it.

(I want to note here that I do think it’s important to draw a line at abusive and harmful behaviour.)

At present, I’m already looking toward our next gathering which will be on the 1st of June. I’m thinking of how to approach this workshop as we prepare for the launch of LIMBO’s second booklet. For the launch, which will be on the 20th of July, we’ll be going back to FramerFramed as a podium has been offered to us for use against the backdrop of an exhibition about transformation. It’s so very apt. I’m thinking of festive feelings. Of glitter make-up and shiny clothes, of dancing and singing and color and joy. We’ll be creating this programme together, creating this launch, creating this space and holding it for one another.

To you who read this, take time to listen to a beat and move your feet. Thank you for stopping by. Blessings and peace be with you.

All the things and how do I choose?

/ RCRuiz

In my previous life, goal setting was a little bit like this thing I would do in intervals. Like at the start of the year, I might set a couple of things for myself and at a certain point a sense of panic would creep in when I realised there were still things I hadn’t done.

Yesterday, as I was reading through the life after treatment module, the goal setting part of it had me thinking. For instance, if I say I want to travel more. What exactly do I mean when I say that? If I say I want to spend more time with my family, what do I really mean by that? And what about getting back to writing and finally finishing that work in progress? What about leaving a legacy and creating space for others? How and where do I even start? That familiar sense of panic came over me–that sense of I’m not sure I have enough time to do all the things.

To be honest, I didn’t actually think about these things when I first listed things down. I basically just filled in whatever and went on my merry way. But yesterday, I realised that I had a rather long list of things I want to do and it’s probably one of the reasons why I’m feeling a bit out of breath because how does one choose and where do I even start?

Thankfully, the module provides the following questions in support, some of which are:

How far along are you in regard to this goal?

What do you need to accomplish this goal?

Do you have all you need to get there?

One of the things on my list is to plan at least one weekend every year when all of us spend time as a family in one house. Last year, we went to Spa in Belgium. We are rather fond of Formula One and I’ve always wanted to visit a race track. Not only is the Spa circuit legendary, it’s also a beautiful track surrounded by lots of nature.

As I was in treatment at the time, my youngest spent most of our visit to the famous Spa circuit pushing me in the wheelchair. I didn’t get to climb up to the viewpoint tower but I loved that the kids got to do that and see it for themselves. It was only for a weekend, but we had a lot of fun with time together as well as time separately.

This year, I’m thinking of a place closer to home with more possibilities for going out into nature and taking walks because I’m more mobile than I was last year and I have more energy than I had.

But while I can plan things and organise things, while music and artmaking and teaching are proving to be quite friendly and within my grasp, I’ve discovered that getting back to writing is a lot more challenging than I had imagined.

Do I struggle with the writing because my brain isn’t quite up to it yet? Or do I struggle with the writing because writing (even when it’s fiction) feels very close somehow and I’m not yet ready to go there? It’s telling that I’m writing about not being ready because that’s actually probably what it is. Will I be ready to go there?

Writing even when it’s fiction has often been a way for me to work through whatever is weighing on my mind at the moment. I doubt that my work is commercially appealing because writing to an audience has probably been the last thing I’ve thought about. I’m not sure if that makes me a bad writer–but basically I write things that tug at me and call to me and make me take that deep dive and a lot of times the dive is personal and involved with the body and how the body moves through society and navigates all these questions that arise. What impact does space have on the body? How does society impact the body? And can one body have an impact or influence in the space they occupy? If so, in what way? (Yep, that’s one example of the process my brain goes through and maybe it’s helpful that I’m writing about it because this is probably a step towards getting there.)

I wish that answers were easy, but often answers are complex and require time and patience and a lot of times solutions to problems are never easy. The concept of good or bad and black and white is simplistic when we live in a nuanced world where many different shades go into what we imagine is one color.

So, this leads me back to goal setting and the objective of it.

Perhaps it’s so we don’t get this feeling of empty hours or days that we must feel. Maybe that’s it. Maybe it’s to give us a sense of purpose. Perhaps it’s to make us feel useful or accomplished. Oh hey, I did this task and that. I cleaned the bathroom without breaking down and I still had the energy to iron some clothes. That’s a win.

Now that I think about it, this sense of time running out is an illusion. We get caught up in the rush of “I must do this” and “I have to accomplish this” or “I must be useful” or whatever narrative we say to ourselves.

I think that we all have the time we need/ to do what we need to do/ and /time never runs out/. We may think that time runs out when we close our eyes in final sleep, but actually time keeps on running and what we accomplish as warm bodies reverberates even after our bodies are gone from the timeline.

Writing about this has helped me shed the rush. What needs to be done will be done and if it’s not done perfectly or as exactly as I imagine it could be, it will be enough. When I look at the timeline, I realise that actually what matters is now. From a minute ago to this minute to the minute that follows after this one. These are the moments that I can make count. Maybe I can give my son a hug or by practice my brush strokes (I’m learning how to use watercolour), or I can go out and find rocks to use for an exercise with the group. Maybe it’s something else. There’s no rush, there’s no panic. Time isn’t running out. I am moving exactly as I am meant to move within the time I occupy.

As usual, this is me thinking out loud on the page. I hope that it’s helpful to someone. Take time to do what matters to you now and if you’re feeling rushed, breathe.

Thank you for taking time to read this. I wish you blessings and peace. Maraming Salamat.

Oh hey! It’s another Tuesday post

/ RCRuiz

Sometimes the words just flow and sometimes they don’t. Today, I was working on the module that comes with the a new program from the physiotherapy class that I signed up for. This class is an intensive three month program which usually is offered after active treatment and it includes not only the physical rehabilitation part of things, but it also offers a module which walks you through a process of reflecting on what’s happened and what you would like to happen moving forward. It’s a module divided into six sessions and signing up for the module includes a page where you list down everything from the moment of diagnosis up to your last active treatment.

It was rather something to look back and realise that from 2022 up to the end of 2024, I was in constant treatment and my days were marked by hospital visits. It’s also good to recognise that I’ve been out of active treatment for five months.

I find myself no longer planning in terms of “if treatment will allow” to thinking in terms of “Oh hey, I can do that thing and take that course and I can play together with the band and go to workshop”. It seems like a small change, but it is actually a huge change from not knowing to some sort of knowing and where planning can now occur in two month stages instead of the one week when I feel good stage. I actually had this idea that I’d dealt with the stages of grief during those three years, but having looked at the dates reminds me that it wasn’t nothing. So here I am thinking on it and feeling thankful that I made it through all those treatments. I am thankful that I’m still here.

I’ve learned that even when we think we can’t, we still can and there is nothing more precious than today and if there’s something worth doing, there’s no sense in delaying the doing of that something.

There was a short period after treatment when I had a sense of “Oh, my days are stretching out now” and “so what do I do?”

Lately, I’ve been filling my days with watercolour practice. As I said to my therapy mates, I didn’t have the opportunity to learn how to use all these different materials when I was young, but I’m learning them now and it’s like a world has opened up in front of me. I didn’t know, for instance, that getting a good result in watercolours has a lot to do with the materials that you use. Of course, it’s the same for all other things, but watercolours are pickier than pastels and acrylics and if you use bad paper, it’s a given that your watercolours will look more grisly than if you used something that’s a better grade. I’m practicing on Aquapad paper which is thick enough and satisfying enough. (Arches are the best, but I feel like I need to get to that point where I can justify spending lots of cash on Arches.)

I’m happy that I have art making to keep me company, because it seems my fiction brain isn’t quite ready yet. I did the thing last week where I decided to just grit my teeth and open the work in progress and after reading the first page, I just had no idea. The sense of overwhelm was such that I decided to close the document and re-think my strategy. Maybe I’m not ready yet to face a work I left at 70k words. Maybe I need to section it up into smaller units that my brain can focus on in small bursts. I’m not sure yet. The work is niggling on the edges of my awareness, it’s just getting down to it that costs more than I can spend at the moment.

In the meantime, the watercolours are spread open on my desk. Brushes and pens and paper with some grisly attempts at portraiture. For the first time, I did manage a reasonable study in values. Not bad, I thought. I put a date at the top. Maybe I’ll look back at it in a hundred days and say: Oh wow. I started there, huh.

For you who have taken the time to drop by and read this, I want to say thank you. Blessings and peace and may your days be filled with good things.

I’ve fallen quite in love with Daniel Smith’s Green Apatite Genuine.

Spring is in the air

/ RCRuiz

It’s been quite a busy period as not only is it exam week for the youngest one, it’s also been a week of appointments and events. I visited the municipal hall last week and handed in my application for a new passport along with a new id picture. It’s probably the first time since I’ve had a passport made that my passport picture doesn’t look like I’m running from the law.

A few days before I went to the municipal hall, I had new pictures taken. On my walk to the shop, I found myself ruminating on my previous passport picture and I decided to ask the photographer if it was possible to have one that was somewhat friendlier. As tends to happen, I walked into the shop and blurted out my thoughts to all and sundry including two surprised customers who burst out laughing when I announced that my last passport picture had me looking like I was a fugitive from the law.

It made for a lighthearted moment and I can happily say that for the first time, I have a passport picture that is somewhat friendlier.

At the municipal hall, there was some difficulty registering my fingerprints. I learned that intense treatments like chemotherapy has this effect of where fingerprints become a bit more hazy. It made me wonder if we ever lose our fingerprints.

“It happens with old people too,” the lady behind the counter says to me. “Not that fingerprints are ever erased, it’s just they don’t register anymore. But we also see this in people like you who have undergone chemo.”

And it somehow strikes me that she hasn’t tagged me as an old person but as someone who has undergone intense treatment.

On Saturday, I travel to Rotterdam. I’m headed there to support the project called Project Take Away. Take Away started as a neighbourhood initiative led by friends Marielle and her partner at ook_huis. It’s a lovely initiative which started with refugees and neighbours coming together to share coffee and talk about coffee and different ways of making coffee and as time progressed it evolved into something more. To celebrate their third year, Take Away released a book documenting three years of work. It’s an impressive volume with beautiful images but most importantly it reflects the vibrant life of this group of people who have been working together, caring for this community and for the neighbourhood and growing into this rich and beautiful art collective.

I think of how we forget the power of small movements like these. How practicing care in the community setting is a radical act in a society that’s grown more and more disjointed and disconnected. It’s not the size of the movement that matters, that we are doing a movement with intention is what matters. The intention drives the movement, drives momentum and leads to change.

I think of how these small movements are so vital when it comes to changing perceptions. When it comes to changing how we see each other and when it comes to making space and holding space for one another. I understand the antipathy that exists on one side of society towards asylumseekers, but I also want society to understand that if it were possible to live humanly where they are, people would not be seeking asylum. Living means more than surviving, living means being able to grow and thrive and fulfil your potential as a human being. This is why we can’t turn our backs or close our eyes to the circumstances that cause people to flee the countries of their birth.

It’s callous to say: ‘go back to where you came from’, when we don’t know the full story.

After the meeting at the Take Away space, we traveled to where Marielle was holding a reading/talk around a book she’d collaborated on together with the artist Chen Yun. This book, titled 51 Personae:Tarwewijk was five years in the making. It’s a unique and beautiful work documenting walks around the Rotterdam neighbourhood of Tarwewijk. What I love most about this work is how in the final publication, it contains the text from these walks in Dutch, English and Chinese. Not on separate pages, but these texts exist side by side on the same page or as extensions of each other.

It made me think of how it’s beautifully representative of the multicultural nature of society and how the world is made up of many different people speaking many different languages and there is room for all of us to live side by side.

Copies of this book are available at Available & The Rat.

I feel like I should write a little bit more about Available & The Rat, but I will do so another time. It’s a space that’s definitely worth visiting.

Spring is in the air. Out in the garden, things are growing. Our prunus tree has grown a bit more sturdy and is spreading out its arms. From the small seat by the water, I have a lovely view of back gardens with tulips coming up, a magnolia tree in bloom and a cherry blossom tree.

I have resolved to go and sit out beside the water as much as I can. For now, I’m ending this lengthy post.

Take some time out of your busy schedule to just sit and reflect on how you want to greet this new season. Life brings with it unexpected things, but when you take time to connect to what’s strong in you, you won’t be easily shaken.

Blessings and peace to you who read this and thank you for dropping by.

Breathe in, Breathe out

/ RCRuiz

February turned out to be a more challenging month as the flu struck and just as I was feeling better, shingles happened. I had this idea that I could get through shingles with just paracetamol, but after enduring a night with no sleep and pain that I can’t describe, I caved and asked my doctor for stronger pain relief. Thankfully, my doctor prescribed pain relief quickly and I have been able to sleep through the night which accounts for why I no longer need the pain relief. I do have this incredible itch where the shingles outbreak happened and a burning sensation pretty much like when you have a bad sunburn.

Recovery from shingles is a process, but I’m glad I’m able to come upstairs to the workroom and do some art practice as well as a little bit of writing.

I was inspired quite a bit by some of the work that I saw when I visited the art fair and had a conversation with an artist who was doing some live painting. That conversation made me think about my own approach to art and art making.

During our conversation, the artist told me that what’s important is to find your own gestures and your own signature. What is it about your art that makes you the artist that you are? Every artist has a signature–not the name you sign, but it’s in the language that exists between the artist and the blank canvas/page.

I think about this conversation as I draw without having a particular goal. I draw repetitions of shapes as a way of tuning in to what am I feeling, what am I thinking, and what is going on in my body and in my spirit today.

Breathe in, breathe out.

In today’s world where everyone seems to want to rush towards a goal or to achieve something or to become someone, being in the moment frees us of all those stresses. When we are free from those stresses of becoming something, we can listen to what our bodies tell us.

Small circles, gridlines, spirals, repetitive mark making and repetitive movements. All of these things are practices that ground us in the body and in the moment. And being grounded allows us to transcend to where we can see beyond the mundane.

I’m stopping here for today.

To you who reads this, thank you for dropping by. Blessings and peace.

Reflecting on what was and what is now

/ RCRuiz

Today, I think of my father standing in the only hospital in Banaue, right after an armed conflict between the government forces and the NPA. (This incident took place during the martial law period when my dad was the only doctor in the mountains.) I think of him being made to choose: Doctor, if you treat one of theirs, we will shoot you. And my father, who was the only doctor in the mountains at that time said to these men: I don’t see government military or NPA, all I see are wounded in need of care. You can shoot me, if you want, but who will take care of your wounded?

And he took care of all the wounded, and in that space of time when he was taking care of their wounded, while they were waiting for him to do his work, the hospital compound became neutral ground.

We are grieving. We grieve for the ones who suffer the consequences of war. We grieve for those who are lost, for those who suffer, for those who have lost. We grieve for what is broken. We grieve for the innocent and for the loss of innocence. We grieve for the brokenness that is in the world.

I think of these things as I prepare for LIMBO, and I think of how we keep spaces safe and how we hold space for those who are vulnerable and need this space. I don’t have much power but I have now and I can ask: What do you need now? What do you need today? How can I help or facilitate or support in such a way that this need is met in this moment that I am with you?

From this point of beginning, I can think in possibilities. I think of mapping the world we dream about, of making visible what is strong and resilient and hopeful and beautiful inside each one of us. I think of how, in a world where conflict has become the norm, liminal spaces are necessary spaces.

Of course, we knew that when they left the hospital, some of my father’s patients continued on with their conflict. We heard their guns in the distance and we knew there were places where it was not safe. But for a moment, when they were in the hospital compound, there was peace.

I want to walk in my father’s footsteps. To say: I am here to serve. If you leave this space feeling stronger, feeling more hopeful, feeling a little more able to face what life throws at you, feeling more connected than disconnected, then that’s good enough for me. I wish I had the power to right all the wrongs in the world, to heal the pains and the illnesses, to bind up what is broken. I don’t have that power, but I can say: I am here in this now. I am also here for you.

This post is more of a personal reflection than one that offers solutions. Because all things in life are connected, because art and life flow seamlessly into and through one another, it becomes inevitable that this too makes its way into my own work.

May lovingkindness surround you and may peace be with you who read these words.

*Having written this, I am thinking of how my father’s stance was an act of resistance. In choosing not to take a side but to address the problem, he opened a path to neutral ground.

Titles are a challenge

/ RCRuiz

Titles are not my strong point. I am currently working on the second draft of a novel titled The Fifth Woman. Don’t ask me why…it probably just felt cool at that time or maybe I was just like: whatever. Let’s just call it this as a sort of jumpstart. So far, I haven’t found anything in the draft that talks about a fifth woman. It’s a pretty amazing feeling though to have been writing consistently everyday for the past two months as prior to that time, my brain often felt like a jumble of words and there was not enough quiet to properly focus on fiction. To my surprise, I have passed 15k on second draft and it looks like it’s still going.

Before I found The Fifth Woman, I had been writing away at The Cartographer novel which I’ve left stranded at 85k because the world was getting so big and unwieldy I had to step back from its noise for a bit.

Finding The Fifth Woman (first draft from end of 2021 before cancer struck) was like finding a gift because there was enough distance for me to appreciate and see where I’d gone off the rails with it ( characters with names like ‘this person’s dad’ and lazy shorthand place names ‘let’s just call this place wherever’ and I’ll call this form of transport something unpronounceable). Clearly, I was just in a rush to finish first draft. When I read it for the first time after regaining my focus, I thought it was someone else’s work, until I got to some place names and memory hit me…oh right. I wrote this while doing the Munabol online workshop for BIPOC kids. And then…Oh. This thing is long. It’s super-long. What is it? Is it a novel? Is it finished? (Yes. It was indeed a first draft clocked in at a little above 65k.) That was two weeks ago.

My current writing speed is an average of 1000 words a day (sometimes 1500), but at the end of a writing session my brain refuses to focus and I just want to go watch Formula one or something mindless for a while. (I have become quite the Formula One and bike racing addict. Tour de France, the Giro, Vuelta, and then there are the classics. Cobblestones! I can hardly watch but I still do anyway.)

I’ve noticed that there is a lot of messiness in my head the closer I get to the appointments for my bloodtest and immunotherapy. As I said to people closest to me, it’s quite weird because it doesn’t hurt, but I have an increasing aversion to being stuck with needles. It melts away once the bloodtest and immunotherapy week have passed and for most of the time I forget that I am under treatment. My oncologist tells me we are on this road for two more years and then we’ll see. It’s an interesting space to be in because no one really knows and I think that’s okay.

Just a little while ago, I bumped into an acquaintance who I hadn’t seen in a long while. Upon hearing about my diagnosis and about all the treatment things, she went: But you’re too young… (I won’t insert what was implied here because it took me aback). It’s one of those really odd responses that makes me want to laugh out loud. I know it’s well-intentioned and well-meant, but I remind people that I am not dead and I have no intention of dying anytime soon. I am completely in the land of the living and I believe I’ll still be here for as long as I am meant to be here. It’s the thought that comes to me when anxiety strikes: Peace. I remind myself. As my mother said to me at the start: you go ask God what he wants to do with you because until He’s done with you, you’re not done doing.

My mother, a cancer survivor, was diagnosed with metastasised cancer when she was 46. It had spread to her bones and she was given one year to live. Today, she’s 85. She laughs talking about it: ‘Actually,’ she says. ‘I decided I wouldn’t die because I didn’t want your Dad marrying someone else.’

There’s this thing about coming face to face with mortality. You come to understand what it means to be alive. I think about one of the participants to the workshop saying: this is my now.

It’s a pretty radical thing to say and to do. To be present in the now. To rest in this moment. To give as well as to take pleasure, to share in what is funny, what makes you laugh, what makes you cry, what warms your heart, what melts you–to choose to be here in now is such a powerful and radical act because it is the essence of being alive.

It’s easy to get pulled into the rat race. To think: I’ll make time for what matters and what makes me happy when I have more time. Time is an ephemera. It’s an illusion we create for ourselves. Time that matters is now. What am I doing now? How am I being present now? What am I sharing of myself now? What kind of memories and legacies am I putting in place now? It’s in this now moment that we are doing and creating and making and establishing connections and as I said to someone precious to me: humans and relationships are more important than things. Wealth, status and possessions you can replace. Connections, relationships and humans you cannot.

Perhaps it’s why I’ve become so invested in The Fifth Woman. Because it’s a messy novel about messy relationships. It’s about the now space versus the could be space. It’s about family and relationships and all the pressures that are exerted upon that precious space of simply being. It could be fantasy, but it could also be science fiction. I really do not know. I’m just writing it. In the now.

Blessings and Peace and Agyamanac Unay for reading.

Opening a door to story

/ RCRuiz

In my personal preparation for LIMBO, I found myself thinking of how to open the door to story and how to create space for participants to immerse in the act of creation without feeling pressured to perform.

How do we support that limbo state? How do we cherish and protect it? And how do we, at the same time help participants to step into a future they create for themselves?

A realisation came to me that the sessions we are planning are not merely sessions of teaching participants how to work with various materials or tell stories. These aren’t the most important parts of those sessions. Producing something finished or something that can be exhibited or placed on display isn’t the goal. Rather the goal is to empower the participants so they can thrive in the liminal space that so many occupy.

Initially, I had thought to teach working with different mediums with the thought of developing or moving towards a goal.

But I thought of how as a writer among writers, I have sometimes observed how the act of telling story moves from being an act of pleasure to an act where the writer becomes pressured to deliver. These pressures placed upon the creative person can transform what was pleasure into obligation and the result of such obligation isn’t always beneficial to the person who creates or even to the creation itself.

So, how do we invite or open the door for participants to come in and share without pressure? How can I employ what knowledge I have gleaned from life in a way that removes or eases the pressure of creating to an expectation?

This afternoon, I asked my youngest son to sit down and work with me for a little while as I tried out one of the activities I had in mind. I asked him to treat the raw medium as if he were an archeologist who had time-traveled from the future. I asked him to bring out of this medium an artifact, and with that artifact to tell me something about the future world that he had envisioned.

I simply listened because I didn’t want to impose my interpretation on what he shared.

As his artifacts, he brought back with him a model of a cell and a pill designed to attack bad cells. He found this pill in the office of a family doctor and what it told him was that it was a medicine that was readily available and accessible for anyone who needed it. In his future world, incurable illness and disease no longer existed. 

By thinking of it in science fiction terms, my son is able to time travel back from his ideal future to share with me a story of what is alive inside him today, without the pressure of performing a perfect story or crafting a perfect artifact.

It doesn’t have to go anywhere. It doesn’t need to be published (although I did end up asking him if I could share it here and he said yes.

I realised that what drew me towards creating and giving workshops was in the connection that came from these kinds of sharing. It’s not important whether people end up publishing or not. What’s important is the stories that are shared and the space that is made for these stories. It’s also the wonder that happens when participants discover that there is space for what they have to share.

What can we do to open doors to story? It’s a question that I carry with me. In doing so, I hope to create space and make space for all those stories waiting to be told.

Blessings and peace.

Quick update and an invite

/ RCRuiz

The update:

My family and I are in the middle of quite an intense season. Early 2022, I was diagnosed with stage 3 uterine cancer. Because the cancer was aggressive, we did not know what to expect, except that I needed major surgery and possibly more things after that. I had a complete hysterectomy in March 2022 followed by 27 sessions of radiotherapy and we hoped that that was that. Unfortunately, in the second half of 2022, we discovered that we were not done.

At that time, we were offered two options, take part in a clinical trial which offered the possibility of immunotherapy which isn’t standard treatment yet for ovarian cancer in the Netherlands, or go the traditional route which was chemotherapy and more chemotherapy. We opted for the clinical trial, got lotted in for six rounds of chemotherapy which seemed to have a hopeful result, except the results weren’t enough and my values just kept dipping so we had to keep postponing almost every other session. After six rounds, my oncologist looked at the results and decided to move me from the chemo arm of the trial into the immunotherapy arm of the trial.

In the midst of all these things, I somehow managed to send off two short stories–one for New Suns 2 (which I have been dreadful at promoting since chemo-brain is a real thing) and one for a Dutch anthology titled De Komeet. Hymne van de Overlevers is my first Dutch story ever and I am thankful for the patience of my editors and thankful to my awesome friend, Marielle who went through the final edits for me when brain fog meant I couldn’t even remember what my story looked like and couldn’t keep my characters names straight. (She thinks she did a minor thing, but trust me, it was major for me.)

My final round with chemotherapy was almost three months ago and I am waiting for immunotherapy to start. I have a tumor in my armpit which creeps me out a bit and we hope that with immunotherapy, this tumor will be brought under control. We don’t know if it will ever go away, but I am quite healthy (aside from this thing) and interestingly, the chronic hypertension for which I took daily meds to keep under control has been miraculously cured. I am no longer hypertensive. I just have cancer. A disease which I abhor utterly since I have lost a number of friends to this disease already. I hate cancer and I am sure God hates cancer more than I do.

In the meantime, my hair has started to grow out and thankfully the brian fog is less of a problem. I believe I can properly talk about my work again and recently, I have contemplated writing again. As usual, the question is: where do I start?

The fight against cancer is an ongoing one.

Where I’ll be at:

I have said yes to a number of things related to De Komeet. On May 29, I will be in Nijmegen doing a panel together with other authors at a convention called Novio Magica. It feels like forever since I’ve done anything related to science fiction and fantasy and I confess to feeling a bit shaky–it’s also been a while since I have been anywhere that isn’t hospital or church related, but I am looking forward to it. If you happen to be in the neighbourhood, do drop by and say hi.

How cool is it that they made a poster and my name is one of the names on it.

(*making a correction to this entry as the literal translation is uterine and not ovarian)

It’s finally happening

/ RCRuiz

I sit here on the eve before the first day of a workshop series I’ve been working on for quite some time. Thanks to the WereldMuseum Rotterdam and to Dona Daria, the workshop I’ve been dreaming of will finally become a reality. Tomorrow, will be the first day of a three-day workshop for BIPOC participants in Rotterdam and I am looking forward to it with anticipation.

In preparing the final schedule for the workshop days, I’ve had to refine and narrow down exercises. Creating exercises that will be doable for participants who are a mix of people who might have done some writing before and people who have always thought of creating stories as being something not for them for innumerable reasons, has been a challenge. And I am really thankful for my partner, Hodan, who’s given me such great feedback and encouragement throughout the process of putting the workshop and the schedule together.

I still don’t know what the class will look like exactly, but the programme includes a mix of individual and communal work, and a mix of spoken, written and visually expressed work. I’ve used different elements of this workshop in different environments with different groups and now I’m eager to see what will happen when these elements are used and applied together over the span of three days. Perhaps the most challenging aspect of this workshop is the multi-lingual aspect, but I will cross that bridge when I get to it.

Most important to me is to let the participants experience how much fun it can be to engage with story on their own terms. That is what I’m keeping in mind as I wind down for the night.

I just had to quickly write about it because it’s finally happening.

Oh yes. We will have fun.